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What is Huntington's Disease?

Formerly known as "Huntington’s Chorea," Huntington’s Disease (HD) is a hereditary progressively degenerative brain disease. It causes involuntary movements of the arms, legs, and face that make walking, talking, eating, and swallowing difficult and potentially impossible. Changes occur in thinking, judgment, and temperament, which make working a job very difficult, if not impossible. Depression is also common. HD progresses over a 10-20 year period. Each child of a parent with HD has a 50-50 chance of inheriting the defective gene and is said to be "at risk" to develop the disease. Symptoms typically appear between ages of thirty and fifty. HD can strike as early as 2 years old through adolescence (juvenile HD) or as late as 80 years old (late onset). 2004 is the 11th anniversary of the discovery of the gene that produces HD. Our best and brightest scientists continue to work toward a cure or treatment for HD. Donations to this ride will expedite this great scientific endeavor and hopefully help realize the vision of a world free of this uniquely devastating neurologic disease. It is conservatively estimated that at lease 40,000 people in the U.S. alone have this disorder, with at least another 150,000 people at-risk of developing the disease.

For more information:

HDSA 1-800-345-HDSA
Huntington's Society of Canada
HD Advocacy Center
Huntington's Study Group

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