...is a bicycle ride from Galveston, TX to Jacksonville, FL for the 28th Annual HDSA Convention (June 8-20, 2013). In 1967, Marjorie Guthrie, the widow of famed folksinger Woody Guthrie, founded the Committee to Combat Huntington’s Disease, which evolved into the Huntington’s Disease Society of America (HDSA). As in the prior fourteen rides, the purpose of the ride is to heighten public awareness of Huntington’s Disease and to raise funds for family services and research towards a cure.

About Us

Welcome

Huntington's Disease (HD) is a neurological, familial disease, passed from parent to child through a mutation on the 4th chromosome. Each child of an HD parent has a 50-50 chance of inheriting the gene which causes degeneration of brain cells, resulting in the loss of the ability to walk, think, talk, reason, and swallow. Onset generally appears at midlife, but in some, onset occurs in childhood (juvenile HD) or in old age (late onset). The disease profoundly affects the lives of entire families, as the person with HD becomes totally dependent on others for his/her care. About one in 10,000 Americans have this disease. Since 1993, a genetic test has been available to those at-risk, to determine whether or not (s)he carries the HD gene. The test does not indicate at what age the disease will develop.

Support

How You Can Help

Contribute in the following ways:

  • Prayers for a safe journey
  • A donation of any amount
  • Arrange or provide accommodations in homes or churches along the route (contact Marie)
  • Organize a fundraising or awareness event with family, friends, church, or social group (contact Marie)
  • Be a guest rider (contact Marie)
  • Buy a ride T-shirt $15-20 plus postage
  • Be listed as a Sponsor on the ride T- shirt - $75 minimum

Read More

Daily Message

During the ride Marie will write a message recounting the highlights and progress of each day. Send an E-mail to Marie’s husband at ronnemec@gmail.com to request subscription.

Read More