“Venture to Vegas” is a 700 mile bicycle ride from Grand Junction CO to Las Vegas NV for
the 27th Annual HDSA Convention (June 8-10, 2012). In 1967, Marjorie Guthrie, the widow of famed
folksinger Woody Guthrie, founded the Committee to Combat Huntington’s Disease, which evolved
into the Huntington’s Disease Society of America (HDSA). As in the prior thirteen rides,
the purpose of the ride is to heighten public awareness of Huntington’s Disease and to raise
funds for family services and research towards a cure.
Huntington's Disease (HD) is a neurological, familial disease, passed from parent to child through a mutation on the 4th chromosome. Each child of an HD parent has a 50-50 chance of inheriting the gene which causes degeneration of brain cells, resulting in the loss of the ability to walk, think, talk, reason, and swallow. Onset generally appears at midlife, but in some, onset occurs in childhood (juvenile HD) or in old age (late onset). The disease profoundly affects the lives of entire families, as the person with HD becomes totally dependent on others for his/her care. About one in 10,000 Americans have this disease. Since 1993, a genetic test has been available to those at-risk, to determine whether or not (s)he carries the HD gene. The test does not indicate at what age the disease will develop.
"On The Road Again" article about Gary Heiman in the Madison Press.
"Bike Trek: The Sequel" - Second article about Gary Heiman in the Madison Press.
"Senior Beacon Article - May 2012" article about Larry Luebke in Senior Beacon paper.
"Cycling for a Huntington's Disease cure" Article about ride in Grand Junction Free Press
"Local women cycle to raise awareness of Huntington’s" Article about ride in Grand Junction Sentinel
"Heiman’s Adventure" article about the ride in the Madison Press - 7/19/2012.